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FIGHT COLORECTAL CANCER
         LEGISLATIVE AND
      REGULATORY AGENDA


                                       2013
     http://fightcolorectalcancer.org/policy
Funding for the Centers for Disease
Control and Prevention’s (CDC) Colorectal
Cancer Control Program (CRCCP)
     • The CRCCP currently provides funding
       through 2014 to 25 states and four
       tribal organizations for implementation
       of colorectal cancer
       education, awareness and screening
       programs.
     • The CRCCP was funded at $43 million
       in FY 2011 and FY 2012.
• Over the past few years, Fight Colorectal
  Cancer has advocated for increasing the
  CRCCP’s budget to $70 million. It is
  estimated, that $70 million would allow the CDC
  to expand the CRCCP nationally.

• Fight Colorectal Cancer has also fought against
  consolidating the CRCCP with the other CDC
  cancer control programs or other chronic
  disease programs.
  The President’s FY 2012 and 2013 budgets
  called for consolidation, but the proposal has not
  received much support to date from Congress.
• Last year, the Senate Appropriations
  Committee approved its Labor-HHS-
  Education spending bill, which flat
  funds the CRCCP in FY 2013.

  However, final action on a FY 2013
  Labor-HHS-Education spending bill is
  still pending.
• http://www.appropriations.senate.gov/
• Recommendation: Fight Colorectal
  Cancer will advocate for increased
  funding for the CRCCP to $70 million
  in FY 2014 and continue to oppose
  consolidation of the cancer control
  programs.
Funding for the Department of
Defense (DoD) Peer Reviewed
Cancer Research Program (PRCRP)
  • The PRCRP falls under the Congressionally
    Directed Medical Research Programs
    (CDMRPs), which funds research for
    colorectal cancer, among other cancers.

    A hallmark of the CDMRPs is their focus on
    innovative, multidisciplinary research. PRCRP
    funding specifically supports research on
    designated cancers with relevance to military
    service members and their families.
• Fight Colorectal Cancer requested $16
  million for the PRCRP in FY 2013.
  The program is currently funded at $12.8
  million. Increasing PRCRP funding by $3.2
  million would restore program funding to
  FY 2011 levels.
• Last year, the House approved its FY 2013
  DoD spending bill, which includes $15
  million for the PRCRP.
 However, final action on a FY 2013 DoD
 spending bill is still pending.
Fight Colorectal Cancer will advocate to
increase funding for the PRCRP to $16
million in FY 2014.
Funding for the National Cancer
Institute (NCI)
   • The NCI funds critical colorectal cancer research, including
     through the Specialized Programs of Research
     Excellence, which enables rapid and efficient movement of
     basic scientific findings into clinical settings.

   • Last year, Fight Colorectal Cancer requested that the
     National Institutes of Health (NIH) be funded at $32.7 billion
     in FY 2013, which would provide the NCI with $5.36 billion.
     In June, the Senate Appropriations Committee approved its
     Labor-HHS-Education spending bill, which would boost
     funding to the NIH by $100 million, for a total of $30.7 billion.
     Of that amount, $5.084 billion is allocated to the NCI, which
     constitutes a $15 million increase.
      The House Labor-HHS-Education would flat fund the NIH at
      $30.6 million. The result is a $2 million cut to the NCI. Final
      action on a FY 2013 Labor-HHS-Education spending bill is
      still pending
• Recommendation: Fight Colorectal
  Cancer will advocate for increased
  funding for the NIH to $32.623 billion
  and NCI to $5.349 billion in FY 2014
Federal Funding Sequestration
 •   In August 2011, Senate Democrats and House Republicans brokered a
     compromise to trim $2 trillion from the budget deficit. Under the deal, $1 trillion
     in spending cuts will occur across defense and non-defense spending programs
     and will be phased in over 10 years. An additional $1.2 trillion in cuts will occur
     over the next 10 years through a process of automatic across-the-board
     spending cuts, or sequestration, of both defense and non-defense programs.

 •   Sequestration is required because the congressional Joint Select Committee on
     Deficit Reduction, which was established by the law, failed to reach agreement
     on a deficit reduction plan. Sequestration will take effect on Jan. 2, 2012.

 •   The Passage of the American Taxpayer Relief Act in January 2013 delayed
     sequestration until March 1, 2013, and the overall amount of cuts was reduced
     by $24 billion, equally divided between defense and non-defense programs.

 •   The Center on Budget and Policy Priorities estimates that if sequestration takes
     effect on March 1, NDD programs would be cut more than $26 billion, which
     results in an across-the-board cut of 5.1 percent. As a result fewer NIH grants
     would be funded and CDC programs would be cut.
• Fight Colorectal Cancer will advocate
  against sequestration for non-defense
  discretionary programs, medical
  research and prevention programs in
  particular, as well as for a balanced
  approach to deficit reduction.
Eliminating Cost Sharing for
Colorectal Cancer Screening
Colonoscopy
 •   Under current law, Medicare beneficiaries must pay a coinsurance when
     their colorectal cancer screening colonoscopy also involves the removal
     of polyps or other tissue. This policy is confusing to Medicare
     beneficiaries and serves as a financial deterrent to this highly effective
     method of colorectal cancer prevention.
     Additionally, while current law also requires most private payers to cover
     colorectal cancer screenings without cost sharing
     (copays/coinsurance/deductible), current regulations have resulted in
     private payers applying the cost sharing requirements differently. Some
     private payers waive cost sharing when a screening involves the removal
     of polyps or other tissue, others do not.

 •   Last year, Fight Colorectal Cancer was instrumental in the introduction of
     legislation in the House (H.R. 4120) that would correct Medicare law, and
     has lobbied the Department of HHS for a change in regulation.
• Fight Colorectal Cancer will seek
  reintroduction of corrective legislation
  and advocate for its passage in the
  113th Congress and continue to lobby
  for a change in private payer
  regulations.
Fight Colorectal Cancer Stamp
Act
   • Because funding for medical research through the NIH
     has remained essentially flat, in 2010 Fight Colorectal
     Cancer championed the introduction of the Colorectal
     Cancer Stamp Act (H.R. 893).
     This legislation would authorize the U.S. Postal Service
     to sell a semipostal, or fundraising, stamp. A colorectal
     cancer semipostal stamp will provide needed
     supplemental funding for federal colorectal cancer
     research and prevention programs without increasing
     federal government spending.
     Revenues raised from stamp sales would be
     distributed to the DoD, CDC, and NIH.
• Support reintroduction and advocate
  for passage of the Colorectal Cancer
  Stamp Act in the House, with the
  priority of also identifying a senator(s)
  willing to introduce companion
  legislation in the Senate
Chemotherapy Parity
  • Many cancer patients have to pay significantly
    more out of pocket for oral anti-cancer
    treatments (e.g., pills) than they do for
    intravenous treatments.
    Legislation was introduced in the 112th Congress
    that requires insurers that cover anticancer
    medications that are intravenously administered
    or injected to provide no less favorable coverage
    for oral anticancer medications.
    The Cancer Drug Coverage Parity Act was only
    introduced in the House.
• Fight Colorectal Cancer will work with
  stakeholder allies to achieve
  reintroduction and advocate passage
  of the Cancer Drug Coverage Parity
  Act in the 113th Congress
Colorectal Cancer
Prevention, Early Detection, and
Treatment Act
   • Fight Colorectal Cancer has been the impetus
     behind introduction of the Colorectal Cancer
     Prevention, Early Detection and Treatment Act.
     This legislation would essentially expand and
     improve upon the CRCCP.
     The bill is authorizing legislation, which means
     that even if the legislation is enacted into
     law, funding to implement the law would still
     need to be appropriated. In the 112th
     Congress, the bill had the support of 30
     cosponsors in the House and four in the Senate.
• Fight Colorectal Cancer will support
  the reintroduction of the bill in the
  113th Congress.
Colorectal Cancer Awareness
Month Proclamation
  • President George W. Bush was the last
    president to issue a proclamation declaring
    March as Colorectal Cancer Awareness
    Month.

    Prior to then, President Bill Clinton issued a
    proclamation in 2000 following the passage
    of a resolution in the Senate requesting that
    he designate March 2000 as National
    Colorectal Cancer Awareness Month and to
    issue a proclamation.
• Pursue introduction of a resolution in the
  House and Senate that would call upon the
  president to issue a proclamation declaring
  March 2013 as National Colorectal Cancer
  Awareness Month.

  Introduction of the resolution would be a
  priority in the Senate, as the House has not
  been inclined as of the 112th Congress to
  consider resolutions on the House floor.
Resources
 • Fight Colorectal Cancer Advocacy
   Tools
   – http://fightcolorectalcancer.org/advocate
     _toolbox
   – http://advocacy.fightcrc.org/site/PageSer
     ver
   – http://fightcolorectalcancer.org

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Fight Colorectal Cancer Legislative & Regulatory 2013 Agenda

  • 1. FIGHT COLORECTAL CANCER LEGISLATIVE AND REGULATORY AGENDA 2013 http://fightcolorectalcancer.org/policy
  • 2. Funding for the Centers for Disease Control and Prevention’s (CDC) Colorectal Cancer Control Program (CRCCP) • The CRCCP currently provides funding through 2014 to 25 states and four tribal organizations for implementation of colorectal cancer education, awareness and screening programs. • The CRCCP was funded at $43 million in FY 2011 and FY 2012.
  • 3. • Over the past few years, Fight Colorectal Cancer has advocated for increasing the CRCCP’s budget to $70 million. It is estimated, that $70 million would allow the CDC to expand the CRCCP nationally. • Fight Colorectal Cancer has also fought against consolidating the CRCCP with the other CDC cancer control programs or other chronic disease programs. The President’s FY 2012 and 2013 budgets called for consolidation, but the proposal has not received much support to date from Congress.
  • 4. • Last year, the Senate Appropriations Committee approved its Labor-HHS- Education spending bill, which flat funds the CRCCP in FY 2013. However, final action on a FY 2013 Labor-HHS-Education spending bill is still pending. • http://www.appropriations.senate.gov/
  • 5. • Recommendation: Fight Colorectal Cancer will advocate for increased funding for the CRCCP to $70 million in FY 2014 and continue to oppose consolidation of the cancer control programs.
  • 6. Funding for the Department of Defense (DoD) Peer Reviewed Cancer Research Program (PRCRP) • The PRCRP falls under the Congressionally Directed Medical Research Programs (CDMRPs), which funds research for colorectal cancer, among other cancers. A hallmark of the CDMRPs is their focus on innovative, multidisciplinary research. PRCRP funding specifically supports research on designated cancers with relevance to military service members and their families.
  • 7. • Fight Colorectal Cancer requested $16 million for the PRCRP in FY 2013. The program is currently funded at $12.8 million. Increasing PRCRP funding by $3.2 million would restore program funding to FY 2011 levels. • Last year, the House approved its FY 2013 DoD spending bill, which includes $15 million for the PRCRP. However, final action on a FY 2013 DoD spending bill is still pending.
  • 8. Fight Colorectal Cancer will advocate to increase funding for the PRCRP to $16 million in FY 2014.
  • 9. Funding for the National Cancer Institute (NCI) • The NCI funds critical colorectal cancer research, including through the Specialized Programs of Research Excellence, which enables rapid and efficient movement of basic scientific findings into clinical settings. • Last year, Fight Colorectal Cancer requested that the National Institutes of Health (NIH) be funded at $32.7 billion in FY 2013, which would provide the NCI with $5.36 billion. In June, the Senate Appropriations Committee approved its Labor-HHS-Education spending bill, which would boost funding to the NIH by $100 million, for a total of $30.7 billion. Of that amount, $5.084 billion is allocated to the NCI, which constitutes a $15 million increase. The House Labor-HHS-Education would flat fund the NIH at $30.6 million. The result is a $2 million cut to the NCI. Final action on a FY 2013 Labor-HHS-Education spending bill is still pending
  • 10. • Recommendation: Fight Colorectal Cancer will advocate for increased funding for the NIH to $32.623 billion and NCI to $5.349 billion in FY 2014
  • 11. Federal Funding Sequestration • In August 2011, Senate Democrats and House Republicans brokered a compromise to trim $2 trillion from the budget deficit. Under the deal, $1 trillion in spending cuts will occur across defense and non-defense spending programs and will be phased in over 10 years. An additional $1.2 trillion in cuts will occur over the next 10 years through a process of automatic across-the-board spending cuts, or sequestration, of both defense and non-defense programs. • Sequestration is required because the congressional Joint Select Committee on Deficit Reduction, which was established by the law, failed to reach agreement on a deficit reduction plan. Sequestration will take effect on Jan. 2, 2012. • The Passage of the American Taxpayer Relief Act in January 2013 delayed sequestration until March 1, 2013, and the overall amount of cuts was reduced by $24 billion, equally divided between defense and non-defense programs. • The Center on Budget and Policy Priorities estimates that if sequestration takes effect on March 1, NDD programs would be cut more than $26 billion, which results in an across-the-board cut of 5.1 percent. As a result fewer NIH grants would be funded and CDC programs would be cut.
  • 12. • Fight Colorectal Cancer will advocate against sequestration for non-defense discretionary programs, medical research and prevention programs in particular, as well as for a balanced approach to deficit reduction.
  • 13. Eliminating Cost Sharing for Colorectal Cancer Screening Colonoscopy • Under current law, Medicare beneficiaries must pay a coinsurance when their colorectal cancer screening colonoscopy also involves the removal of polyps or other tissue. This policy is confusing to Medicare beneficiaries and serves as a financial deterrent to this highly effective method of colorectal cancer prevention. Additionally, while current law also requires most private payers to cover colorectal cancer screenings without cost sharing (copays/coinsurance/deductible), current regulations have resulted in private payers applying the cost sharing requirements differently. Some private payers waive cost sharing when a screening involves the removal of polyps or other tissue, others do not. • Last year, Fight Colorectal Cancer was instrumental in the introduction of legislation in the House (H.R. 4120) that would correct Medicare law, and has lobbied the Department of HHS for a change in regulation.
  • 14. • Fight Colorectal Cancer will seek reintroduction of corrective legislation and advocate for its passage in the 113th Congress and continue to lobby for a change in private payer regulations.
  • 15. Fight Colorectal Cancer Stamp Act • Because funding for medical research through the NIH has remained essentially flat, in 2010 Fight Colorectal Cancer championed the introduction of the Colorectal Cancer Stamp Act (H.R. 893). This legislation would authorize the U.S. Postal Service to sell a semipostal, or fundraising, stamp. A colorectal cancer semipostal stamp will provide needed supplemental funding for federal colorectal cancer research and prevention programs without increasing federal government spending. Revenues raised from stamp sales would be distributed to the DoD, CDC, and NIH.
  • 16. • Support reintroduction and advocate for passage of the Colorectal Cancer Stamp Act in the House, with the priority of also identifying a senator(s) willing to introduce companion legislation in the Senate
  • 17. Chemotherapy Parity • Many cancer patients have to pay significantly more out of pocket for oral anti-cancer treatments (e.g., pills) than they do for intravenous treatments. Legislation was introduced in the 112th Congress that requires insurers that cover anticancer medications that are intravenously administered or injected to provide no less favorable coverage for oral anticancer medications. The Cancer Drug Coverage Parity Act was only introduced in the House.
  • 18. • Fight Colorectal Cancer will work with stakeholder allies to achieve reintroduction and advocate passage of the Cancer Drug Coverage Parity Act in the 113th Congress
  • 19. Colorectal Cancer Prevention, Early Detection, and Treatment Act • Fight Colorectal Cancer has been the impetus behind introduction of the Colorectal Cancer Prevention, Early Detection and Treatment Act. This legislation would essentially expand and improve upon the CRCCP. The bill is authorizing legislation, which means that even if the legislation is enacted into law, funding to implement the law would still need to be appropriated. In the 112th Congress, the bill had the support of 30 cosponsors in the House and four in the Senate.
  • 20. • Fight Colorectal Cancer will support the reintroduction of the bill in the 113th Congress.
  • 21. Colorectal Cancer Awareness Month Proclamation • President George W. Bush was the last president to issue a proclamation declaring March as Colorectal Cancer Awareness Month. Prior to then, President Bill Clinton issued a proclamation in 2000 following the passage of a resolution in the Senate requesting that he designate March 2000 as National Colorectal Cancer Awareness Month and to issue a proclamation.
  • 22. • Pursue introduction of a resolution in the House and Senate that would call upon the president to issue a proclamation declaring March 2013 as National Colorectal Cancer Awareness Month. Introduction of the resolution would be a priority in the Senate, as the House has not been inclined as of the 112th Congress to consider resolutions on the House floor.
  • 23. Resources • Fight Colorectal Cancer Advocacy Tools – http://fightcolorectalcancer.org/advocate _toolbox – http://advocacy.fightcrc.org/site/PageSer ver – http://fightcolorectalcancer.org