The patient perspective_v3_final

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Gregg P. Skall, J.D. Counsel, National Capital Lyme and Tick-borne Disease Association Member, Womble Carlyle Sandridge & Rice, PLL, attended the Workshop on the Critical Needs and Gaps in Understanding Prevention, Amelioration, and Resolution of Lyme and Other Tick-borne Diseases: the Short-Term and Long-Term Outcomes and gave the following presentation: Addressing the Gaps in Scientific Research on Lyme and Other Tick-Borne Diseases - A Patient Perspective.

Health & Medicine

Gregg Skall National Capital Lyme and Tick-Borne Disease Association October 12, 2010 The Patient Perspective Definitional Term: “ Lyme” is used to signify the complex of Lyme & co-infections

[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],Treat the patient not the test (Olano)

[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[For a child] long term effects last 50-70 years (Jacobs)

[object Object],[object Object],[object Object],The hardest thing to say to a parent is “I don’t know” (Jacobs) Everyone is studying the early stage of this infection, no one is studying the persistent phase of the infection (Barthold)

[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],You do not require an antibody response to develop the disease - Weis How a disease is defined often defines the winners and the losers - Aronowitz

[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]

[object Object],[object Object],[object Object],[object Object],We need direct antigen detection, I’m not keen on antibody tests (Donta)

[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],All that shouting drowns out all the complexity and the nuance and the work that needs to be done (Pam Weintraub)

[object Object],[object Object],[object Object],[object Object],[object Object],Lyme disease is a clinical diagnosis

[object Object],[object Object],[object Object],[object Object],Science is not belief; but the will to find out! (Luft)

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The views expressed in the presentations are that of the author and do not necessarily reflect the views of the Government of Canada. Presentations are shared in the original format received from the presenter. Presentations given at the Conference to Develop a Federal Framework on Lyme Disease are the property of the author, unless otherwise cited. If you reference the author's work, you must give the author credit by naming the author and their work as well as the place and date it was presented. For more information, contact the Lyme Disease Conference Secretariat at maladie_lyme_disease@phac-aspc.gc.ca

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