These are results of the Community Based Diagnostic Partnerships, a core component of the Autism Diagnosis Education Pilot Project. ADEPP is administered by the Ohio Chapter, American Academy of Pediatrics thanks to a grant from the Ohio Department of Health.
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ADEPP DX Partner Data
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2. Number of children evaluated 23 Gender 15 M 8 F Chronological age Range 17-91 months Under 36 months 10 37-48 months 6 49-60 months 5 > 60 months 2
3. Diagnoses Number % Autism 6 26% PDD-NOS 3 13% Aspergers 1 4% TOTAL ASD 10 43% Language Delay/Disorder 6 26% Language + Behavior 3 13% Global Delay 3 13% No Clinical Dx 1 4%
4. Diagnosis x Age Age ASD Other Under 36 months 5 5 37-48 months 1 5 49-60 months 3 2 > 60 months 1 1
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7. *Adapted with permission from Family-Centered Practices Scale , Dunst & Trivette, 2004 With one exception, Never Very Little Some of the time Most of the time All of the time Really listened to my concerns/requests 1 2 3 4 5 Treated me with dignity and respect 1 2 3 4 5 Saw us in a positive way 1 2 3 4 5 Were sensitive to our cultural/ethnic background 1 2 3 4 5 Understood our situation 1 2 3 4 5 Listened for our strengths and interests 1 2 3 4 5 Helped me learn more about my child’s development 1 2 3 4 5 Helped me be an active part of the eval 1 2 3 4 5 Recognized the good things I do as parent 1 2 3 4 5 Were flexible and responsive 1 2 3 4 5 Helped me figure out what to do next 1 2 3 4 5
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9. How satisfied are you with . . . Not at all Some what Very How the evaluations were explained to you 1 2 3 4 5 How the educational team and the physician listened to you 1 2 3 4 5 How the educational team and the physician made you feel like an equal member of the team 1 2 3 4 5 How their findings were explained to you 1 2 3 4 5 How your questions were answered 1 2 3 4 5 The diagnosis itself (e.g., language delay, autism) 1 2 3 4 5 The recommendations that were shared with you 1 2 3 4 5 Where the evaluation process was completed 1 2 3 4 5 How long it took to complete the evaluation process 1 2 3 4 5 If you had to go through this evaluation process again, would you? 1 2 3 4 5 Would you be willing to recommend the process to a friend? 1 2 3 4 5
10. Age First Concerned Age When Shared Concern What happened? Age at Dx 12 12 Ped referred to B-3 23 6 24 Ped referred to Dx Team 27 13 20 Ped referred to B-3 28 24 26 Referred to local agency 40 12 12 Ped told me to wait it out 53 21 26 Referred to B-3 56 24 54 No info from parent 68
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